TSGAC
2019- TSGAC Letter: Comments on Tribal Engagement with the NIH All of Us Research Program
TSGAC outlined a number of concerns, including: Lack of respect for Tribal data sovereignty. Data sovereignty involves a Tribe’s right to govern the collection, ownership, and application of their own data. Because the parameters of All of Us are broad and ambiguous, Tribes feel unsafe and unwilling to partake in the research. Lack of cultural …